My Story: People Say Money Can Never Buy Happiness But We Could Have Remained Happy If We Had Enough Money
“My sister’s diagnosis was a big shock to all of us but things kept worsening and Dad got paralysed again. We lost my sister due to lack of funds and stop my Dad’s treatment. Help me in my Dad’s recovery here: Ketto.
Once, after coming back from school, I was so excited to see my mother overwhelmed on my sister, Vaibhavi’s birthday. She had cooked all her favorite dishes. Those memories were so special. I wish I could go back to time and just pause those moments. Life is so unpredictable but they say: keep moving forward. I have held myself together somehow, but it seems so difficult to accept the fact that we’ve lost Vaibhavi.
People say money can never buy happiness but we could have remained happy if we had enough money. Vaibhavi got diagnosed to a rare genetic disorder known as Porphyria. She suffered a lot and looking at her made me cry. I always felt so helpless.
It is devastating when the person you love so much is in extreme pain. We went to so many doctors and the only way to save her were through really expensive injections. These injections were not available in India but I wanted to do my best to save her.
We knocked at every possible door to help but it is heartbreaking to see how people turn their backs when asked for help. Mom managed to get loans from various places for Vaibhavi and Dad’s treatment. Dad used to cry for not being able to do anything as he was bed ridden.
My father experienced his first paralytic attack 15 years ago. He was on bed rest for almost a year. Mom struggled to manage three little kids without any family income. My Dad got back to work after recovery and we lived happily with whatever we had. Then is when Vaibhavi got diagnosed with Porphyria and soon after that Dad got another paralysis attack.
There was no one to earn and we had no money for medicines for both of them. So I decided to drop out and started working at the Lalit hotel from where I had done my industrial training. My salary was not enough for the medical bills and basic household expenses. We faced many challenges but my Dad and sister’s health was of more importance. So we cut down to the bare minimum – our grocery shopping used to be very minimum.
Things kept worsening. Vaibhavi had to be hospitalised every 2 months and the uncleared bills and loans kept mounting. My youngest sister, Sheetal’s education was on stake as we had no money to pay her fees or afford her daily travel for college. I am trying my best to ensure she completes her education. We seek help from various trust foundations. Our house is also on loan and since Dad is unable to work we are taking help from my cousin. There are very few people who have come forward to help us – my cousin is one of them.
Since Dad was working at a saree shop his salary could just help us so much. We had no savings. In fact, at present, there are a number of pending loans that we had taken for Vaibhavi’s treatment. We had to stop Dad’s physiotherapy due to the financial issues.
We lost Vaibhavi 2 months back and we miss her each and every moment. My world revolved around her and I feel so shattered..I wish I could save her life. I want to continue my father’s treatment, I can’t imagine losing him. I want Sheetal to finish her education but at the moment it is very difficult for us to help her with her expenses.
I miss the good old days when we all use to live a simple happy life. Vaibhavi will be missed forever. I remember how she held my hand whole night when she was in pain and her pain made her so restless. She would lose control over her mind and used to hit me but then there were days when she would hug me so tight. I know deep down she felt bad and helpless but her pain was unimaginable.
My father can’t speak but his eyes speak so much. Few days back he sobbed for 3days and I could see the pain that he felt. Once he held my hand and apologised through hand gestures – seeing him joining his hands in front of me, made me feel so emotional. We all cried together and missed our little sister.
Some wounds are so bad and deep that they break you. My salary is not enough to manage the basic expense but I really want to pay off all the loans and start my Dad’s treatment at the earliest.
Most of the times I try to make my family feel better. I avoid crying in front of them and the only time when I can really cry my heart out is after everyone is asleep or I would go to the washroom and vent it out. I feel I am a failure as I could not save my sister.
Poonam left her studies at the age of 18 and started working for her family. She is the only working member but her income is not sufficient to fulfil the basic needs. She wants her sister to study and her Dad’s treatment to be done. If she completes all of this then she can probably complete her education as well.”
Know the treatment details here.
Story By – Mansi Dhanak
Campaign initiated by – Mission Josh
Campaign amount: 23,00,000/-
You can help make Poonam’s life better by donating through Ketto.